{"id":1096,"date":"2019-11-29T20:19:07","date_gmt":"2019-11-29T20:19:07","guid":{"rendered":"http:\/\/blog.kendallrace.com\/?p=1096"},"modified":"2020-11-23T18:52:53","modified_gmt":"2020-11-23T18:52:53","slug":"1096","status":"publish","type":"post","link":"http:\/\/blog.kendallrace.com\/?p=1096","title":{"rendered":"Ryken’s PMSF Fundraiser"},"content":{"rendered":"
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Ryken’s Phelan McDermid Syndrome Foundation Fundraiser<\/h2>\n

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On December 14th 2019 I am doing a 12 hour team mountain bike race in the McDowell Mountains. I am going to do one of the 16.5 mile laps while towing my 6 year old son Ryken. He loves going on mountain bike rides. Ryken has a rare genetic disorder called Phelan McDermid Syndrome, there are about 1400 reported cases in the world. https:\/\/www.pmsf.org\/about_pms\/<\/a><\/p>\n

My plan was to donate 100% of the funds to the PMSF.org foundation which conducts research into this rare condition. But we recently started researching therapy dogs for Ryken because he does so well around dogs. A fully trained therapy dog costs $24,000-$32,000 and to make it more complicated I am allergic to dogs so we need to find one who is hypoallergenic. We have found a dog from a local breeder and placed a deposit on it.<\/p>\n

My current plan is to start with this hypoallergenic pure breed dog and pay for several training courses out of pocket rather than trying to come up with $24,000 all at once. All remaining money from the fundraiser after paying for the dog and some training will go directly to the Phelan McDermid Syndrome Foundation. https:\/\/www.pmsf.org\/research\/<\/a><\/p>\n

The event:<\/strong>
\nhttps:\/\/ziarides.com\/event\/dawn-to-dusk-az\/<\/a><\/p>\n

How to Donate:<\/strong>
\nPaypal: trelken@gmail.com<\/a> (please send as a friend\/family payment so they don\u2019t take a cut)
\nZelle, Cash App, Venmo: 602-550-5171 or trelken@gmail.com<\/a>
\nPaypal messenger: Trent Kendall<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Ryken’s Phelan McDermid Syndrome Foundation Fundraiser   On December 14th 2019 I am doing a 12 hour team mountain bike race in the McDowell Mountains. I am going to do one of the 16.5 mile laps while towing my 6 year old son Ryken. He loves going on mountain bike rides. Ryken has a rare […]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"bgseo_title":"","bgseo_description":"","bgseo_robots_index":"index","bgseo_robots_follow":"follow","footnotes":""},"categories":[6,9],"tags":[7],"class_list":["post-1096","post","type-post","status-publish","format-standard","hentry","category-mtb","category-rykens-adventures","tag-dawn-to-dusk-pmsf"],"_links":{"self":[{"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=\/wp\/v2\/posts\/1096","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=1096"}],"version-history":[{"count":4,"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=\/wp\/v2\/posts\/1096\/revisions"}],"predecessor-version":[{"id":2711,"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=\/wp\/v2\/posts\/1096\/revisions\/2711"}],"wp:attachment":[{"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=1096"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=1096"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/blog.kendallrace.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=1096"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}